Tuesday, May 26, 2009

Update on MAH-Tini

Ah Nian Aileen and Ah Deh Bobby came over for a visit today and we spoke about MAH-Tini's twitches. She was surprised that Dr Phuah classified MAH-Tini's case as a seizure as the definition of seizure includes loss of consciousness whereas MAH-Tini is still very much alert when he has his twitches.

She suggested that we seek 2nd opinion, so that we can have a better understanding of his condition, as well as a reconfirmation of the Dr's diagnosis.

Ah Nian Aileen is also concerned that the Dr is starting MAH-Tini on medication when he isn't sure what condition MAH-Tini is suffering from.

So, when we can, we'll take MAH-Tini to the polyclinic and have him referred to KK hospital. Hopefully, we can end the chapter soon.

Friday, May 22, 2009

Update on MAH-Tini's Twitches

We took MAH-Tini for his review today and Dr Phuah said that we should start him on another round of EEG, this time for 24hrs and also, for him to go through MRI, to scan that he has no injury. As we feel that we're still not ready for him to go through such tests, I'd asked what's the maximum time we can delay having this as we'd really like that he outgrows it.

Dr Phuah said that we can only delay for another month. We asked him if he had ever seen MAH-Tini's kind of twitches before and he said that usually, the seizures occur on both arms while MAH-Tini's only affecting the left side.

As he suggested that MAH-Tini go on medication even if the test results show normal, I'd asked - for how long will he need to be on medication and how effective is it? Dr Phuah said that medication will have to be about a year or 2 but did not mention if he will be cured eventually. We forgot to ask about side effects though.

We also asked what's the worst scenario if we didn't put him on medication, Dr said that the side of the brain which is affected will not be absorbing the necessary information and may worsen in time to come. We got a little concerned. Of course we want MAH-Tini healed. I don't want him to blame us next time for not getting him treated.

So now, we are buying time for another month, hoping that he will grow out of it on his own. But then, lately, there's an increase in his twitches, of which, the Dr did say that the condition is getting worse if there's an increase in frequency. This is so worrying.
Friends, please do continue to pray for our little MAH-Tini, that he will outgrow his twitching activities soon. Amen.

Saturday, May 09, 2009

MAH-Let's Gastric Flu (Part 2)

MAH-Let only threw up once last night. Thank God. But then, she kept complaining of unbearable pains in the stomach. I feared it was something worse than just stomach flu and decided to bring her to KK hospital.

As the swine flu was still on high alert (orange alert), there was an unexpected small crowd at the hospital. I thought it was going to be super crowded. MAH-Let was still crying in pain while waiting for her turn to see the doctor. It really upsets me to know that we couldn't do anything for her to alleviate that pain.

Finally, her turn came. We answered to every question which the doctor asked and 1 got me really pissed.

Doctor : Had she EATEN anything today or over the last few days
MAH-Tai : She hadn't EATEN anything since Wed, when it happened.
Doctor : Define that
MAH-Tai : (puzzled - define what???) She hadn't eaten anything since wednesday. Only drank some water but even then, she throws up each time we gave it to her.
Doctor : So, she had something.
MAH-Tai : (super pissed) But that's drinking! (You didn't ask about drinking! You moron!)
Doctor : But you said she hadn't had anything but she had.
MAH-Tai : (looked at MAH-Ge who knew what was coming and calmed MAH-Tai down) hmpf...hmpf.... (mumbled under her breath)

What the hell! I know the difference between eating and drinking! Stupid doctor asked if she had EATEN anything and not if she HAD anything! Anyway, think he knew that I wasn't the least happy and he tried to joke and sucked me up. It doesn't work, idiot!

He checked and found hard stools and ordered MAH-Let to have them flushed out. He thinks she's constipated. It was really difficult to get MAH-Let to take the anti-pain (antacid) medicine and even more difficult to get her to lie down to have a tube of medicine stuffing up her anus. My poor baby. We had to hold her down while she was screaming at the top of her voice in protest and pain. I felt myself crying with her as she screamed. I held her tightly after the whole ordeal and told her that I'm with her and am sorry to have her go through this. I know how she feels and the pain that she's going through cause I went through this discomfort before I gave birth to both kids.

After a couple of minutes, she asked to go to the toilet. She flushed out almost everything. Thank God, she felt better after that. She still refused to take the antacids and told us that her stomach wasn't as painful as before. We had to give it to her still. She threw up right after the antacids went in. Anyway, the doctor saw her again and said that she had most of the stools out but there were still some in there. He said to leave them alone and let them come out when she had the urge. I'd rather she took stool softeners or laxatives to have it out than to let her go through that again. My poor baby....

We picked up about 6 or 7 bottles of medicine for her before heading back home. By then, it was already 3pm. MAH-Ge and I finally had lunch. It was about 8+ in the morning when we left home.

Thursday, May 07, 2009

MAH-Let's got Gastric Flu

Poor MAH-Let...diagnosed with gastric flu and hasn't stopped vomitting. She also hasn't stopped groaning in pain.

MAH-Let woke up as usual in the morning yesterday for school but complained of a tummy ache almost immediately when she got up. But as she was hungry, Yati gave her some fish crackers to eat. Not the usual breakfast that I will allow. She tried pooping before leaving to catch the school bus but nothing came out.

While waiting for the bus with Yati, she complained of tummy ache. Yati told her to go to the toilet when she got to school and stay in the class if still not well. When Yati came up after MAH-Let got up the bus, Yati said that she looked really unwell and had cold sweat.

The teacher called and said that MAH-Let's threw up in school. I left home immediately to pick her up and took her to the clinic near our home. Doctor diagnose that she had gastric flu and had wanted to administer a suppository to stop the vomitting. But MAH-Let still looked well and active then and she said she'd prefer oral medication 1st.

At home, she threw up a couple of more times in the afternoon, even after taking the medicine. At night, was the worse....as gastric flu is contagious, we made extra effort to keep our hands clean at all times, washing after every time we touched her and kept MAH-Tini away from her. I slept with MAH-Tini in the other room, while MAH-Ge slept with MAH-Let in our room.
All of us couldn't sleep the whole night. MAH-Let kept complaining of tummy ache and was crying all the time. Throughout the night, she threw up about 8 times! Each time we tried to put some water in her mouth to keep her hydrated, she will throw up. Her fever shot up. MAH-Ge sponged her but it still won't go down. We were up to our necks, didn't know what to do and kept wondering if we should send her to the hospital.

Morning finally came. I got up as early as I could and got MAH-Let to the clinic again as soon as she got up. She was crying at the clinic while waiting for her turn. Everyone was looking but no 1 would give up their number for us except 1 kind lady, who was just a number ahead of us. Not much of a difference but better than nothing. We went in to the doctor's room and he gave her 2 suppositories. 1 for fever and another, anti vomitting.

She stopped throwing up the whole day and the fever also went down. But her tummy was still aching a lot and she still cried each time it struck. My poor baby. I wish I could help to remove that pain from her. She didn't let us touch her at all. It was really really uncomfortable for her. My heart aches each time she cried and we are so helpless....there was nothing we could do to help ease that pain.

She hadn't pee'd the whole day and it was a little worrying. She might have been too dehydrated. I tried to make her drink and finally, made her pee. Thank God! Her pee was fairly clear and was quite a lot too. But...she still complained of tummy pain.

We'll give her another dose of medicine tonight and pray that all will be ok in the night and we can see her full of energy and active tomorrow...

Monday, May 04, 2009

MAH-Tini's Got the Flu

This is the 1st time Little MAH-Tini fell ill. He's got the flu. Nope, we didn't come back from Mexico, where all the hype about the swine flu is happening at the moment. Nor did we come into contact with anyone who just came back from there. I suspect he got it from our maid, Yati as she had the flu the day before MAH-Tini fell ill. I just told her that she will need to inform us if she didn't feel well next time and not wait till she's really sick to tell us. Viruses are most contagious just before the full symptoms show.
MAH-Tini's nose has been runny since Saturday. But it being a weekend, we are not able to bring him to a paediatrician and had to monitor him till we can get to a doctor on Monday. He got a little better yesterday but then, had the fever last night. Both MAH-Ge and I got up. I gave MAH-Tini a dose of paracetamol and sponged his forehead. His fever subsided after a while. Thank God.
This morning, his nose was still a little runny. As I couldn't reach the clinic on the phone, I decided to pop in at the clinic. Unfortunately, they are so full that they can't take in anymore patients and told me to return this evening.
Looking at him now, he's much better. His nose is not runny, and he's still active. My dilemma, should I bring him to the doctor later then?

Wednesday, April 29, 2009

The Cry Babies

Daddy had a hard time experiencing both babies crying. I had such a great time looking at Daddy trying to tame those kids that I cried too! I laughed till I cried! The whole scene was so hilarious! Now, Papa knows it's not easy handling 2 wailing kids! Welcome to my world, Dad!

It was so funny, that I joined in the fun too! Hahaha...

Friday, April 24, 2009

MAH-Tini's Happy in his Walker!

MAH-Tini loves running around the house in his walker! He's found freedom going to wherever he likes. His favourite place? His room's window where he can look down at the streets below and watch the world go by...heehee....

MAH-Tini in his Mickey Mouse hat

The Little Red Indian Chief

Laughing Machines

Here's another video of MAH-Let making MAH-Tini laugh. Only she has the magic to make him laugh like this. It's fun watching them play together. Thank God for Blessing us with these 2 beautiful babies!



MAH-Tini's Leap of Faith

MAH-Tini jumped off the bed, knowing that his daddy will catch him when he falls. MAH-Tini has taught me a lesson on how pure his faith is, in his own father. How about us? Do we have faith in our Father in Heaven and know that He will catch us when we fall? We should leave all our cares and worries to Him, knowing that He will never let us fall. The Lord has been good to us and we continue to thank Him for His Blessings.